Devin whynot

DIPG, because of its rarity, gets very little funding, research, or backing from the medical community. That has to change! Our children deserve a chance to grow up. The world lost a superhero, and a family lost their baby. With a mission of aiding and supporting families facing a DIPG diagnosis. Together, we will ensure DIPG doesn't steal another child from their family and their future.

We also take an active roll in spreading awareness for a "rare" disease that gets little to no funding. Through our fundraising events we hope to maximize efforts to help support those families in the fight of their life with DIPG. We hope through speaking out and creating awareness for DIPG we can help others in their fight and to someday find a cure. We love acts of kindness!!

In Devin's honor and memory do something kind for someone else. This event was a beautiful night out in Boston. Join our team and run the greatest marathon there is. Devin's Dash is a 5k for all ages and abilities. This year we added a virtual race so supporters don't have to be in the Metrowest area to participate. It has also made the already devastating fight for so many families, harder. It is an online website that includes a blog of my journey, my speaking engagements, and inspirational merchandise.

I think Devin shows himself as a bee, a constant reminder of how sweet he is but how much his loss stings. Meant to Bee ME is a way that I hope to be able to take care of my three surviving sons as a single mom. WhyNotDevin is my nonprofit in memory of Devin, that helps other families with a child with DIPG and advocates to raise awareness for a disease that many have never heard of. I also hope that through telling my stories, I can help someone else believe that whatever is that they are going through they can overcome.

Both organizations are my heart and soul, a way to do as much as I can for my four boys, and myself. WhyNotDevin merchandise will be available online in a few weeks. We have been working on a website and online store. Meant to Bee ME merchandise is available at www. Your email address will not be published. Save my name, email, and website in this browser for the next time I comment. Post comment. Skip to content. We recently sat down with Christine Suau, founder of WND to learn more about the how things are going and her new venture, Meant To Bee Me: Tell us a little about Devin and why you founded this organization.

What does the name Why Not Devin mean? Tell us about Meant to Bee ME — what is the story behind the brand? How does it tie to WhyNotDevin? Where can we find merch? Related Posts. Lagers of the World: Japan August 27, July 28, The First Sip July 21, Leave a Reply Cancel reply Your email address will not be published.